World epilepsy day 2023

Today, on “More than 50 million people around the world live with epilepsy,” said Dr Francesca Sofia, IBE President. “For many of these people, the stigma attached to epilepsy is often more difficult to deal with than the disease itself. “Stigma, fueled by fear and misconceptions, takes many forms and can be present in the family, community, school, clinic, and workplace. As a result, people with epilepsy may not seek the help they need and are at real risk of social exclusion. This can create a major economic burden and have a negative impact on mental wellbeing and overall quality of life.” Addressing stigma and discrimination is a key component of the World Health Organization (WHO) “Epilepsy has significant personal, health, economic and social inclusion consequences for people living with the disorder and for their families and communities, the response should not be anything less than integrated, comprehensive and engaging all of society,” said Dr Dévora Kestel, WHO Director for Mental Health and Substance Use. The Intersectoral Global Action Plan calls for 80% of countries to have developed or updated their legislation to promote and protect the rights of people with epilepsy by 2031. Examples of good practice that can support governments, NGOs, and communities in reducing stigma and changing discriminatory legislation can be found in the WHO’s IBE completed a “In virtually every corner of the world, epilepsy is misunderstood. Epilepsy is treatabl...

The 11th Annual Epilepsy Awareness Day at Disneyland “EADDL”, including a packed Education Expo is scheduled for October 30 – 31, 2023. EADDL is the combined effort of one family’s thankfulness for their own daughter’s recovery (10+ years) and a united community with a passion for winning the fight against epilepsy. October 30, 2023: 10am-5pm October 31, 2023: 10am-5pm WHERE: Disneyland Hotel Convention Center WHO: People of all ages with epilepsy, their families and friends, and those whose lives are touched by epilepsy or who want to raise awareness for epilepsy. WHAT: The EXPO will feature Non-Profit support groups, Epilepsy centers, Drug and related product manufacturers, seizure dogs and their trainers, and epilepsy professionals from around the world. HOW MUCH: The EXPO IS FREE. Please remember this is a one of a kind event. You don’t want to miss it! *We (EADDL) do not have sponsorship or funding to bring people out to come to the event. A few of the non profit support groups we work closely with raise funds and will have applications for trips to be awarded (you have to fit certain criteria). This info will be posted as we receive it and all inquiries will be directed at them. November 1, 2023 – Time TBD WHERE: The happiest place on earth…Disneyland Resort, Anaheim, CA. HOW MUCH: Once you register for the expo, you will receive a link to our discounted Disneyland Park tickets. Everyone age 3 and above need a ticket to get into the Disneyland Park. You are welcome t...

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